Monday, August 10, 2015

Eosinophilic Esophagitis Update

(first ice cream in almost a year!)

Two weeks ago, Harris had another scope (his 4th since last October!) and it came back perfect with 0 eosinophils.  This is his third perfect scope in a row and we are so thankful and grateful that we are making real progress.  Also, I'm flooded with relief that his esophagus has fully recovered from the the mess that it was last September.  I feel like approaching his treatment so methodically has really paid off and I'm very hopeful that we will get to the bottom of what's causing his EE.

His last scope was testing to see how he did while back on gluten and, with no eosinophils present, that tells us that he is not having a reaction to gluten.  So he's permanently back on both gluten and corn, which is a big deal and I feel incredibly blessed because of it.  Did you know that some children with EE can't eat food at all?  They have to be fed through a feeding tube in their stomach, so I will not complain about having a single dietary restriction.  It's doable.  

So the last remaining food group that we have taken out of Harris' diet is dairy.  Deductive reasoning tells us that this is the culprit.  However, instead of just assuming that dairy is the bad guy we will put Harris back on dairy for three months and then do a scope to see if eosinophils are present.  It feels wrong to put him back on something that might do him harm, but we feel that we must rule out the possibility that we need to look at other factors more closely (there have been a few cases of environmental EE but his doctors don't feel this is really a possibility for him, I'm not 100% sure).  If he has any symptoms we will stop allowing dairy and will probably not even do a scope.  

So that's where we stand with EE.  This is the first time in 6 years that Harris can eat anything he wants, except for nuts.  He is thrilled to be back to dairy, even if it's just for a little while, because that means he can have some ice cream this summer!  Sorbet is good and all but it's not ice cream...


  1. I am so happy to hear that you are closer to finding the food that hurts him! Awesome!

  2. I can't get over the transition to virtually all foods! Celebrating with you and fingers crossed that ice cream can stay in his diet!

  3. When you find yourself dreading dry or dense foods because you have difficulty swallowing them, take note! You might have eosinophilic esophagitis. This means your esophagus narrows so much that food gets stuck, resulting in impaction – which is a medical emergency. Have yourself checked for it – don’t just assume that you have food allergies or just need to chew your food more thoroughly!
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